Martin attended the ROS1ders Cancer Charity drop-in session in Parliament today to learn about ROS1+ Cancer.
ROS1-positive cancer is a rare genetic variant of non-small cell lung cancer (NSCLC), occurring in approximately 1–2% of NSCLC cases in the UK. This mutation involves a rearrangement of the ROS1 gene,leading to the production of an abnormal protein that drives uncontrolled cell growth. The condition can have a profound physical, emotional, and mental impact on patients, with regular daily functions becoming a struggle.
ROS1ders is a global, patient-led nonprofit organisation dedicated to supporting individuals diagnosed with ROS1-positive (ROS1+) cancer. Founded in 2015 by a group of ROS1+ lung cancer patients, the charity has grown to become the largest collection of ROS1+ patients and caregivers worldwide, with members spanning over 30 countries. They aim to improve outcomes for all ROS1+patients through a supportive network to share experiences and information, collaborating with clinicians and researchers to advance the treatments available and educate as many people as possible on this rare condition.
Today's Parliamentary drop-in session was an opportunity for MPs like Martin to speak with some of the charity’s members who are living with ROS1-positive (ROS1+) cancer and learn more about the impact of this rare condition as well as the treatment options and advancements.
